A rare disease and tough decisions
I can’t imagine what it’s like not being able to hold your newborn child.
That’s the case for Haleigh and David Jacobs in Blanchard.
In a story I wrote with Sarah Phipps as photographer and videographer, we learned about Brantley Jacobs, an adorable 3-month-old baby who (likely) has the rare disease Klippel-Trenaunay syndrome.
Because of how far the disease spreads on Brantley’s lower body, it causes him too much pain when you try to hold him. Sometimes, on a good day, his parents and family can sit a pillow and thick blanket on their laps and place Brantley on that. But generally, they can’t.
The Jacobses love their son and are trying to determine what’s best for him. They’re headed to Boston in a week to get another opinion. The family has a Facebook page with information on how you can help out.
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